I am coming to the end of a 12 hour day in the clinic for the EPI-743 trial. They drew blood 6 times today at different intervals to test how long the drug lasts in the system. I have been sitting here on my computer researching the TV air times for Le Tour de France, sending emails, napping, hitting up the cafeteria for a snack, and chatting with the awesome staff here at the Clinical and Translational Research Center (CTRC) here at CHOP. I am 3 months in to a 1 year trial after which the data will tell us if we’ve got something.
2014 AANEM Public Recognition Award
Recognized as one of Barefoot Wine’s “Soles of the Year”
My TEDx Talk
Learn about Friedreich’s ataxia and how you can help fight back